0789426684 (hardcover, 240 pages). [autism,aspergers,children,fiction] Marjorie Reynolds. The Civil Wars of Jonah Moran (Berkley Pub Group, 2001). ISBN: 042517834X (paperback, 327 pages). [autism,aspergers,fiction] Tom Robbins. Half Asleep in Frog Pajamas. One of the main characters talks about his autism, reporting benefits from Dolphin Therapy he received when he was young. ISBN: 0553377876 (paperback, 386 pages, Bantam, 1995); ISBN: 0787103829 (audio cassette, Dove, 1995). [autism,fiction] Colby F. Rodowsky. Clay (Farrar Straus & Giroux, 2001). ISBN: 0374313385 (hardcover, 176 pages); ISBN: 0060006188 (paperback, 160 pages, HarperTrophy, 2004). [autism,fiction,children] Nancy Taylor Rosenberg. California Angel (New York: Signet, 1995). Paperback. Plot: a woman is haunted by dreamlike memories of children she believes she somehow saved. The question is whether she is an angel or a kidnapper and murderer. A character at the beginning of the story is an autistic boy named Raymond Gonzolas whose recovery is triggered by the main character. ISBN: 0451186281 ; ISBN: 0451191773 (paperback, 400 pages, Signet, 1996); ISBN: 0613133315 (hardcover, Econoclad Books, 1999); ISBN: 0453009255 (audio cassette, Penguin Audiobooks, 1995). [autism,fiction] Richard Russo. Nobody's Fool (Random House, 1993). This is the book that was made into a 1994 movie with Paul Newman. According to a reader, the book (but not the movie) included a character with autistic symptoms caused by abuse. Another reader identified no such character. ISBN: 0394577787 (hardcover); ISBN: 0679753338 (paperback, 549 pages, Vintage, 1994). [autism,fiction] Al Sarrantonio. The Boy With Penny Eyes. Main character sounds autistic. It is a horror novel. ISBN: 0812525604 . [autism,fiction] Eleanor Spence. The Devil Hole (New York: Lothrop, Lee & Shepard, 1976). 215 pages. Book for children (ages 12-15), set in Australia. Originally published as The October Child. ISBN: 0688417981 ; ISBN: 0192713841 (paperback, 151 pages, Oxford Univ Press, 1976, under title The October Child). [autism,fiction,children] Brad Strickland, Barbara Strickland & Todd Cameron Hamilton, illustrator. Crisis on Vulcan (Minstrel Books, 1996). Part of the series Star Trek Starfleet Academy. Ages 9-12, Paperback, First of the series. I was told that the first three books of the Starfleet Academy series include an autistic character. ISBN: 0671000780 (paperback). [autism,fiction,children] Mary Thompson. Andy and His Yellow Frisbee (Bethesda, Maryland: Woodbine House, 1994). Illustrated, Grades K-5. http://www.woodbinehouse.com/andy.html ISBN: 0933149832 (paperback, 24 pages). [autism,fiction,children] S. Kennedy Tolsten. Troy's Amazing Universe, A for Aliens (Booklocker.com, 2005). Part of the series Troy's Amazing Universe. http://www.booklocker.com/books/1898.html ISBN: 1591136725 (paperback, 124 pages.). [autism,fiction,children] S. Kennedy Tolsten. Troy's Amazing Universe, M for Mall (Booklocker.com, 2003). Part of the series Troy's Amazing Universe. http://www.booklocker.com/books/1201.html ISBN: 1591133181 (paperback, 116 pages). [autism,fiction,children] S. Kennedy Tolsten. Troy's Amazing Universe, T for Toy (Brite Press, 2005). Part of the series Troy's Amazing Universe. http://www.booklocker.com/books/1526.html ISBN: 0974318515 (paperback, 152 pages). [autism,fiction,children] John Vornholt & Todd Cameron Hamilton, illustrator. Aftershock (Minstrel Books, 1996). Part of the series Star Trek Starfleet Academy. Ages 9-12. Second of the series. I was told that the first three books of the Starfleet Academy series include an autistic character. ISBN: 0671000799 (paperback). [autism,fiction] Amy Maida Wadsworth. Faraway Child (Covenant, 2005). ISBN: 159156817X (paperback, 200 pages). [autism,fiction] Jude Welton. Adam's Alternative Sports Day: An Asperger Story (Jessica Kingsley Publishers, 2004). ISBN: 1843103001 (paperback, 128 pages). [autism,aspergers,children,fiction] Nancy Werlin. Are you alone on purpose? (Boston: Houghton Mifflin, 1994). Ages 9-12 or young adult. Novel about teenagers: a thirteen year old girl with an autistic twin brother. ISBN: 039567350X (hardcover, 204 pages); ISBN: 0449704459 (paperback, Fawcett Books, 1996); ISBN: 0785794360 (Econo-Clad Books, 1999). [autism,fiction,children] Taro Yashima. Crow Boy (Viking, 1955). Ages 4-8. Runner up for 1956 Caldecott Honor book. I assume it is a story, but I am not certain. ISBN: 0670249319 (hardcover); ISBN: 014050172X (paperback, 1976). [autism,fiction,children] Dorothy Zietz. Until Tomorrow: A Family Lives with Autism (1988). Reader: poorly written and unconvincing. [autism,fiction] Other Generation X. Monthly comic book from Marvel Comics which as of 10/96 is reported to include a superhero named "M" who is autistic. Music of Hikari Oe. Denon 78952, 1995, DDD. Music of the autistic composer Hikari Oe performed by Hiroshi Koizumi. Hikari Oe's story is told in the accounts A Healing Family and The Music of Light: The Extraordinary Story of Hikari and Kenzaburo Oe. Music of Hikari Oe Volume 2. Denon 78953, 1995, DDD. More music of the autistic composer Hikari Oe performed by Akiko Ebi, Tomoko Kato (violinist), and Hiroshi Koizumi. See above. Nobody Nowhere, the CD. Donna Williams. http://www.jkp.com/catalogue/autism/wil_nob_cd.html _________________________________________________________________ _________________________________________________________________ Autism FAQ - Well-known Autistic People _________________________________________________________________ Note: the accounts of some of these people are listed above under the section, Popular Attitudes/Entertainment". Well-known people who have chosen to write or speak about their Autistic family members: * Richard Burton (deceased actor) about his daughter by his first wife. * William Christopher (Father Mulcahy on the TV show M*A*S*H) about his son, Ned. * Will Clark (Baseball player) about his son. * Paul Collins (writer) about his son. * Myron Cope (Pittsburgh sportscaster) about his son. * Tom Henke (Toronto baseball pitcher) about his son. * Carl Erskine (former baseball player). * Audrey Flack (scuptor, photographer), mother of an adult with autism. * Doug Flutie (football player) about his son, Doug Jr. * Stephen J. Gould (scientist/writer) about his son, Jesse. * Merton Hanks (football player) about his daughter, Milan. * Scott Mellanby (hockey player) about his son. * Joe Mantegna (actor), father of daughter with autism. * Dan Marino (football player) about his son. * Jenny McCarthy (actress), about her son, Evan. * Wynton and Brandford Marsalis (jazz/classical musicians) about their brother. * Mark McEwen (TV weatherman on CBS Morning News), about his brother, Sean. * Barbara Roberts (former Governor of Oregon), mother of adult with autism. * Tracy Rowlett (Dallas anchorperson) about his son. * Jonathan Shestak (movie producer) about his son, Dov. * Beverly Sills (opera singer) about her son, Bucky. * Phoebe Snow (singer), mother of daughter with autism. * Sylvester Stallone (movie actor) about his son, Seargeoh. * BJ Surhoff (Baltimore baseball player, 1996) about his son, Mason. * David Tomlinson (the actor who starred in Mary Poppins, Bedknobs and Broomsticks, the Love Bug etc) had an autistic son, whose diagnosis and education is mentioned in some detail in Mr Tomlinson's autobiography Luckier than Most. Autistic individuals who have become well-known through their writing and/or speaking on their experiences: * Donna Williams. * Temple Grandin. http://www.grandin.com/ * Thomas McKean. Occasionally there is speculation as to whether some particular well-known person is autistic, e.g. an author, scientist, or mathematician known to be unsocial and very focused. For example, there is an audiotape called Was Einstein Autistic? (see Bibliography Section) However, despite such speculation, these people in general could socialize in ways far advanced of typical autistic behavior: eye contact, etc. A theory currently in vogue is that autism is a severe variant of a mild condition that causes people to lack social skills: the book Shadow Syndromes expands on this theme. It is probable that nearly all famous people occasionally cited as being possibly autistic fall more naturally under such a milder classification. One of the most convincing cases I've heard of a famous person being truly autistic was in regards to Canadian pro golfer Moe Norman. There is a biography of him: The Feeling of Greatness, the Moe Norman Story by Tim O'Connor. _________________________________________________________________ _________________________________________________________________ Autism FAQ - Well-known Researchers and Practitioners _________________________________________________________________ Leo Kanner psychologist credited with identifying early infantile autism in the 30s and 40s and who gave it the label "early infantile autism" in 1943. Hans Asperger working in Austria, published 'Autistic psychopathology in childhood' in 1944, one year after Kanner's paper (though it was submitted before Kanner was published). Because of the war, he was probably completely unaware of Kanner's work. It appears that Asperger's patients were somewhat less impaired in communicating than Kanner's. Unlike Kanner, he believed in a biological, rather than a psychological, cause. His paper appears in Frith's 'Autism and Asperger Syndrome'. Bernard Rimland a researcher and parent who reportedly undertook to study the causes of autism, expecting to find a psychological cause, but came to the conclusion that the cause is biological. He wrote a book in 1964 on the subject which, over the long run has been very influential. Bruno Bettelheim Freudian psychiatrist who wrote on a number of topics including autism. Works from the point of view that it is a psychiatric condition. See section on "History" above. Eric Schopler founder of the TEACCH program in North Carolina. One of the first professionals to involve parents in the treatment and education of children with autism. Ole Ivar Lovaas developer of Discrete Trial Training (DTT), a form of operant conditioning (behavior modification) designed to treat Autism. See "Behavioral Therapy" under "Treatment". Michael Rutter British researcher, worked extensively on autism in the 1970's, still involved but now more interested in other topics. Rosemary Crossley in Australia. First to try the use of facilitated communications with autistic children. Douglas Biklen introduced facilitated communications in USA based upon work of Rosemary Crossley. Guy Berard physician in Annecy, France who developed the Audiokinetron, one of the possible devices used in Auditory Integration Training. Martha Welch primary promoter of Holding Therapy in USA. Uta Frith wrote books on subject. http://www.cdu.ucl.ac.uk/uta/home.htm Stanley Greenspan wrote books on child with developmental disabilities, though not specifically autism spectrum. _________________________________________________________________ _________________________________________________________________ Autism FAQ - Organizations and Services _________________________________________________________________ See also "Initiatives" and "Charities and Foundations" sections. Autism Society of America (ASA) 7910 Woodmont Ave. Suite 650 Bethesda, MD 20814-3015 Tel: (301) 657-0881 FAX: (301) 657-0869 Info referral telephone number: 1-800-3-AUTISM email: VERONICA.M.ZYSK@gtees.sprint.com http://www.autism-society.org/ Older names of this organization: National Society for Children and Adults with Autism National Society for Autistic Children (NSAC) Autism Society Canada 129 Yorkville Ave #202 Toronto, Ontario M5R 1C4 Canada (416) 922-0302 FAX: (416) 922-1032 National Autistic Society (of Great Britain) 276 Willesden Lane, London NW2 5RB, U.K. http://www.oneworld.org/autism_uk/ Society for Auditory Integration Training (SAIT) - an organization which hopes to provide parents information on people who offer AIT (to prevent just anyone from hanging out a sign and claiming to know what they are doing without meeting some type of qualifications). Society for Auditory Integration Training c/o Center for the Study of Autism Boardwalk Plaza, Suite 230 9725 SW Beaverton-Hillsdale Hwy. Beaverton, OR 97005 (503) 643-4121 Autism National Committee 635 Ardmore Avenue Ardmore, PA 19003 http://www.autcom.org/ Also known as AUTCOM or ANC Autism Network International (ANI) - the only autistic-run self-help and advocacy organization for autistic people. Publishes newsletter, arranges pen pals, as well as other advocacy activities. Autism Network International P.O. Box 448 Syracuse, NY 13210-0448 href="http://www.students.uiuc.edu/~bordner/ani.html ANI runs a private e-mail mailing list (ANI-L) intended to be a meeting place and advocacy network for autistics and cousins (abbreviated as "ACs"). Family members, friends, and professionals are welcome to participate as well, provided they observe the list policies which are meant to ensure that ANI-L remains autistic space. For information on joining ANI-L, send a message to: listserv@listserv.syr.edu with the message body reading: subscribe ANI-L Adriana Foundation - an organization dedicated to the deployment of Facilitated Communication. 2001 Beacon Street - Room 214 Brookline, Massachusetts 02146 (617) 232-8550 232-8634 fax: (617) 232-8628 Georgiana Foundation - an organization dedicated to the deployment of Auditory Integration Training. They maintain a list of AIT practitioners who use the Audiokinetron device developed by Dr. Guy Berard. P.O. Box 2607 Westport, CT 06880 (203) 454-1221 fax: (203) 454-3788 Autism Research Institute - Directed by Bernard Rimland. Used to be "Institute for Child Behavior". Publishes a quarterly newsletter, Autism Research Review International (see below). (Autism Research Review International) reviewing recent work on autism. Has the latest reports on drug and nutritional therapies, and on possible causes of autism. The newsletter is also a forum for Dr. Rimland's opinions on the value of megavitamin therapy and dimethylglycine, the usefulness of aversive stimuli for extinguishing self-injurious behavior, and the fraudulence of facilitated communication. 4182 Adams Avenue San Diego, CA 92116 (619) 281-7165 http://www.autism.com/ari/ Center for the Study of Autism - All I know is that they are active in Auditory Integration Training and the Society for Auditory Integration Training is based there. Boardwalk Plaza, Suite 230 9725 SW Beaverton-Hillsdale Hwy. Beaverton, OR 97005 (503) 643-4121 National Autism Research Foundation - ? Parents For Early Intervention (PFEI) - organization started by Lovaas dedicated to helping families that have implemented intensive behavioral treatment programs with young developmentally disabled children. They publish the PFEI Newsletter. PFEI Membership Autism Project-Lovaas, 308 Westwood Plaza, #136 Los Angeles, CA 90024 Sensory Integration International 1602 Cabrillo Ave. Torrance, CA 90501 (310) 320-9986 (I also heard: (310) 533-8338) MAAP (More Able Autistic People) - offers information relating to high functioning autism and asperger's. Publishes a newsletter. MAAP PO box 524 Crown Point, IN 46307 1-219-662-1311 Feingold Association of the United States, and the Autism, Intolerance & Allergy Network (USA) (AIA-USA). 127 East Main Street Suite 106 Riverhead, NY 11901 (516) 369-9340 FAX: (516) 369-2988 membership@feingold.org http://www.feingold.org/ Autisme France 1 Place d'Aine 87000 Limoges France The Arc US National organization on mental retardation. It shares a lot of issues with organizations specific to Autism, and it offers some services specific to Autistic people. The Arc of the United States 500 East Border Street, Suite 300 Arlington, Texas 76010 (817)261-6003 FAX: (817)277-3491 E-mail: thearc@metronet.com http://www.thearc.org/ InternAUT Autism Self-advocay organisation centered on the Internet runs the a-day mailing list. http://www.inlv.demon.nl/internaut Families for Early Autism Treatment (FEAT) Northern California organization in support of early behavioral intervention. Similar FEAT organizations have been set up in other locations, but I'm not certain how close the affiliations are. feat@feat.org http://www.feat.org/ Asperger Syndrome Coalition of the United States (ASC-U.S.) (formerly ASPEN of America) P.O. Box 49267 Jacksonville Beach, FL 32240-9267 (904) 745-6741 info@asc-us.org http://www.asperger.org/ _________________________________________________________________ _________________________________________________________________ Autism FAQ - Initiatives _________________________________________________________________ See also section "Charities and Foundations". National Autism Hotline, (304) 523-8269, provided by the Autism Services Center, 101 Richmond Street, Huntington, WV 25702. Annual Autism Conference by Autism Society of America, July of each year. Intended for parents, researchers, psychologists, and educators. ASA fax-on-demand service for autism documents. Call 1-800-FAX-0899, 24 hours a day, 7 days a week. Have your fax number handy and you can request a list of the available documents, which includes a copy of the Autism Society of North Carolina Book Store List. The flyer reports that the service is provided, in part, by a grant from the American Speech-Language-Hearing Association. TEACCH (Treatment and Education of Autistic and Related Communication Handicapped Children) program in North Carolina. Division TEACCH Administration and Research CB# 7180, 310 Medical School Wing E The University of North Carolina at Chapel Hill