_________________________________________________________________ Autism FAQ - Bibliography _________________________________________________________________ This bibliography includes literature aimed at different audiences including the general public, parents, educators psychologists, and researchers. If you read this on the web, the ISBN numbers link to Amazon.com which might offer the book for sale. Sections of this bibliography: A. Journals & periodicals dedicated to Autism B. Journals that often carry articles on Autism C. Selected Articles D. Bibliographies E. Proceedings F. Film and Video Documentaries G. Audiotapes H. Children's nonfiction I. Other Frequently Asked Questions Memos J. Writers K. Publishers L. Books Note: for books that report the experiences of individuals, see section: "Accounts". For fiction, for all ages, see: "Fiction". Both are subsections of the section above, "Popular Attitudes". Journals & periodicals dedicated to Autism Advocate-Autism Society of America (formerly NSAC Newsletter) (See Autism Society of America above under "Organizations"; as of 12/94, the cost was $30/year). The ANDI News (ANDI; see ANDI above under "Initiatives") Quarterly newsletter on dietary intervention; articles include information, advice, and recipes. (http://www.autismndi.com/) ASAP News (Potental Unlimited Publishing) Bi-monthly newsletter of the Autism Support and Advocacy Project. (http://www.pup-asap.com/newsletter.htm) ASK Review Online review, in English and Dutch. (http://www.autism.nl/ask-review/) Asperger United A newsletter for adults with autism and Asperger syndrome. Quarterly. asp.utd@nas.org.uk Australia Autism Review 1981-?. Autism/Asperger's Digest (Future Horizon) Published every two months since Nov-Dec 1999. (a href="http://www.aspergersdigest.com/">http://www.aspergersdige st.com/) AUTISM: The International Journal of Research and Practice (SAGE Publications, in association with the National Autistic Society (UK)) To be published twice in 1997, quarterly from 1998. First issue July 1997. For more details, see (http://www.sagepub.co.uk/journals/details/aut.html), or contact Jonathan Carter Autism Research Review International (Autism Research Institute, 1987-). Reviews recent work on autism. Includes reports on latest drug and nutritional therapies, and on possible causes of autism. A project of Dr. Rimland. (http://www.autism.com/ari/newslet.html) CAP Newsletter (Newsletter of the Collaboratative Autism Project, 1998-) [it might be online-only, I'm not certain] (http://www.autismgeneticresearch.org/). Communication (Newsletter of NAS in UK) [similar to Advocate?] (http://www.oneworld.org/autism_uk/publica.html#communication). The Communicator (Autism National Committee Newsletter; $20/year as of 12/6/94, mail to ANC, 7 Teresa Circle, Arlington, MA 02174) (http://www.enginnet.com/autcom/) The Facilitated Communication Digest (Facilitated Communication Institute; $20/year in USA as of 6/4/96, see address of the Facilitated Communication Institute above under "Initiatives") (http://soeweb.syr.edu/thefci/) The Facilitator (Autism Directory Service). Focus on Autistic Behavior (Pro-Ed, Inc., 8700 Shaol Creek, Austin, TX 78758) (Note: as of 4/99 apparently this title is no longer published; perhaps renamed) Focus on Autism and Other Developmental Disorders (Pro-Ed, Inc., 8700 Shaol Creek, Austin, TX 78758) Quarterly (http://www.proedinc.com/store/1.html) Journal of Applied Behavioral Analysis (1968-; http://www.envmed.rochester.edu/wwwrap/behavior/jaba/jabahome.h tm; also known as JABA) Journal of Autism and Developmental Disorders (formerly Journal of Autism and Childhood Schizophrenia, 1971-1978) (Plenum, 1979-). LINK Publication of Autism-Europe, published three times a year. Looking Up Monthly general autism newsletter initiated during 1998, aimed at English speakers world wide. Address: Looking Up, PO Box 25727, London, SW19 1WF, England. (http://www.feinst.demon.co.uk/looking-up.html) M.A.A.P. (newsletter for More Advanced Autistic People, P.O. Box 524, Crown Point, IN 46307). The Morning News (Carol Gray, Editor; Jenison Public Schools, Jenison Michigan) Quarterly newsletter on education of children and adults with autism. (http://futurehorizons-autism.com/morningnews.asp) NAARATIVE (National Alliance for Autism Research) (http://www.naar.org/) Our Voice Newsletter of ANI (see above under "Organizations"). the source Newsletter of the Asperger Syndrome Coalition of the United States (http://www.asperger.org/ Journals that often carry articles on Autism American Journal of Psychiatry American Journal of Speech-Language Pathology British Journal of Psychiatry Child Personality and Psychopathology: Current Topics New York, John Wiley & Sons. Devopmental Medicine and Child Neurology Focus on Exceptional Children Pro-Ed Publishers International Journal of Neuropsychiatric Medicine Journal of Child Neurology Journal of Child Psychology and Psychiatry Journal of Intellectual Disability Research Journal of the American Academy of Child and Adolescent Psychiatry Journal of the Association for persons with Severe Handicaps Mental Retardation Topics in Language Disorders Note: I could use some ideas! -the editor Selected Articles There are way too many articles on Autism to include and this FAQ will do more than scratch the surface, listing a few of the most influential articles. A 1985 book (Classic Readings in Autism edited by Anne Donnellan, see below under "Books") is a selection of many of the most important articles to that date. H. Asperger. "Autistic psychopathy in childhood", Translated by Uta Frith. Included in Uta Frith's Autism and Asperger's Syndrome (see below under "Books"). Baron-Cohen S; Allen J; Gillberg C. "Can autism be detected at 18 months? The needle, the haystack, and the CHAT." British Journal of Psychiatry, 1992 Dec, 161:839-43. (UI: 93130306) Sue Bettison "The long-term effects of auditory training on children with autism", Journal of autism and developmental disorders (1996) 26:no 3. 361-374. Douglas Biklen. "Communication Unbound: Autism and Praxis", Harvard Educational Review (1990): v60n3, 291-314. This article describes Biklen's research on facilitated communication at the Deal Communication Centre in Melbourne, Australia. Biklen observed 21 people classified as autistic using facilitated communication. The article includes a description of the methodology, a literature review on autism and communication with a special focus on how facilitated communication fits in the context of this literature, and a careful description of students' communication through facilitation. Edward Fenske et al. "Age at Intervention and Treatment Outcome for Autistic Children in a Comprehensive Intervention Program", Analysis and Intervention in Developmental Disabilities (1985) 5:49-58. Stanley Greenspan, and Serena Wieder. "Developmental Patterns and Outcomes in Infants and Children with Disorders in Relating and Communicating: A Chart Review of 200 Cases of Children with Autistic Spectrum Disorders", The Jornal of Developmental and Learning Disorders (1997) Volume 1 Number 1. K. Hovarth et al "Improved social and language skills after secretin administration in patients with autistic spectrum disorders", Journal of the Association for Academic Minority Physicians (1998) 9(1):9-15. Leo Kanner. "Autistic Disturbances of Affective Contact", Nervous Child 2 (1943): 217-250. Reprinted in Childhood Psychosis: Initial Studies and New Insights, ed. Leo Kanner (Washington, D.C.: V. H. Winston, 1973). Also reprinted in Classic Readings in Autism, ed. Anne M. Donnellan (New York: Teacher's College Press, 1985). The original paper describing what we now call autism. Describes a number of children that Leo Kanner had seen in the course of his practice, among whom he detected a pattern. It still serves as a very reasonable and instructive overview of the symptoms. J.J. McEachin, T. Smith, and Ole Ivar Lovaas. "Long-term outcomes for children with autism who received early intensive behavioral treatment", American Journal on Mental Retardation (1993) 97:359-372. Ole Ivar Lovaas. "Behavioral treatment and normal educational and intellectual functioning in young autistic children", Journal of Consulting and Clinical Psychology (1987) 55:3-9. Richard Perry, Regina Decarlo, and Ira Cohen. "Cast Study: Deterioration, Autism, and Recovery in Two Siblings", Journal of American Academy of Child and Adolescent Psychiatry (1995) 34, 2:232-237. This is a paper on Catherine Maurice's two autistic children whose recovery she reported in her book, Let Me Hear Your Voice. Bernard Rimland & Steve Edelson. Article on AIT published in the "Second Opinion" section of the May 1994 American Journal of Speech-Language Pathologists. This study employed more than 300 subjects, used the EERS, the Audiokinetron and the ATET as AIT devices. In this study the authors concluded (among other findings) that the filtering of specific frequencies was superfluous to the effect of the AIT procedure (i.e.not a nec. component). The authors did not use a control group for this study and instead relied on the control data from the pilot study which included a very small sample. Bernard Rimland & Steve Edelson. "Auditory integration training in autism: A pilot study", Journal of autism and developmental dosorders (1995) Vol 25, 61-70. E. Schopler, J. Olley. "Comprehensive Educational Services for autistic children, the TEACCH Model", in Handbook of School Psychology (Wiley, 1982). E. Schopler, R.J. Reichler, R.F. DeVellis, K. Daly. "Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS)". Journal of Autism and Developmental Disorders (1980) 10:91-97. Describes test for rating preschool children, see CARS under section above, "Glossary". Lorna Wing. "The history of ideas on autism: legends, myths and reality," AUTISM: The International Journal of Research and Practice (1997) 1. Among other things, surveys the pre-Kanner/Asperger references to autism. Bibliographies (See Sobfey, Autism Bibliography and Kehrer, Internationale Autismus-Bibliographie under "Books"). I have seen numerous short lists of book recommendations put out by various Autism support organizations. I have assembled a short list, "Autism Book Recommendations" consisting of those books listed in this FAQ Memo that are most often cited by readers of the AUTISM mailing list. It and other online bibliographies and reading lists are available through the web page "Autism Resources" cited in the first section of this memo ("Mailing List, Archives, FAQ Memo, Web Page"). Another source of a lot of references is Anne Donnellan's Classic Readings in Autism. It does not have a bibliography per se, but between the articles reprinted and their references, a lot of material is listed. Some bibliographies: Barbara Baskin. Beat of a Different Drummer [or possibly Sound of a Different Drummer]. Annotated bibliography of books on various disabilities. Tristram Smith. "Autism" in Handbook of Effective Psychotherapy, T.R. Giles, ed., (New York: Plenum Press, 1993) 107-133. Describes many approaches to autism as well as reviews the literature for validation. Leans strongly to behavioral methods. Harry W. Wright et al. "Autism: A Selected 1990-1992 Bibliography", Perceptual and Motor Skills (1993) vol. 77, pp. 1363-1385. See also: Cohen & Donnellan Handbook of Autism and Pervasive Developmental Disorders and Michael D. Powers Children With Autism, both below under "Books". Proceedings ?. Autism on the Agenda (National Autistic Society, 1996). Papers from the National Autistic Society Conference held at Leeds University, 1994. [autism,proceedings] ?. Autism: hope is not a dream. Proceedings from conference in Barcelona, Spain, 1996. [autism,proceedings] ?. A New Dawn of Awakening--ASA Conference July 1994 (Future Education, 1994). [autism,proceedings] ?. Symposium on autism: a one day function organised by the Apex Trust for Autism and the Post-graduate Committee in Medical Education, University of New South Wales. [autism,proceedings] Anne Alvarez, editor & Susan Reid, editor. Autism And Personality; Findings From The Tavistock Autism Workshop (Routledge, 1999). I've also seen the title as Autistic Child As a Person. ISBN: 041514602X (paperback, 256 pages); ISBN: 0415146011 (hardcover). [autism,proceedings] Autism Research Institute. DAN! Conference Syllabus Spring 2004: April 16-19, 2004 Washington DC http://www.autismwebsite.com/ari/pubs.html [autism,treatment,proceedings] Autism Research Unit. Biological Perspectives in Autism (1993). Proceedings from the 1993 conference of the Autism Research Unit of the University of Sunderland. [autism,proceedings] Autism Research Unit. Experimental Biology and the Autistic Syndromes (1989). Proceedings from the 1989 conference of the Autism Research Unit of the University of Sunderland. [autism,proceedings] Autism Research Unit. Experimental Psychology and the Autistic Syndromes (1990). Proceedings from the 1990 conference of the Autism Research Unit of the University of Sunderland. [autism,proceedings] Autism Research Unit. Living with Autism: The Individual, The Family and The Professional (1992). Proceedings from the 1992 conference of the Autism Research Unit of the University of Sunderland. [autism,proceedings] Autism Research Unit. Psychological Perspectives in Autism (1995). Proceedings from the 1995 conference of the Autism Research Unit of the University of Sunderland. From conference at The College of St. Hild & St. Bede, University of Durham, April 1995. [autism,proceedings] Autism Research Unit. Therapeutic Approaches to Autism: Research and Practice (1991). Proceedings from the 1991 conference of the Autism Research Unit of the University of Sunderland. [autism,proceedings] Autism Research Unit. Therapeutic Intervention in Autism: Perspectives from Research and Practice. (1995). Proceedings from the 1996 conference of the Autism Research Unit of the University of Sunderland. From the Conference at University fo Durham, April 1-3 1996. [autism,proceedings] Autism Society of America. ASA National Conference on Autism, 1997. [autism,proceedings] Autism Society of America. Open Minds, Open Doors: The Autism Society of America Conference Papers (1996). For 1996 ASA National Conference. [autism,proceedings] Autistic Children's Association of South Australia. Autism; cure tomorrow, care today, proceedings of a conference on the autistic child held at Adelaide, South Australia, 16-18 August 1967 (Warradale, S.A.: Autistic Children's Association of South Australia, 1969). 124 pages. [autism,proceedings] Don W. Churchill, Gerald D. Alpern & Marian K. DeMyer, ed. Infantile autism; Proceedings of the Indiana University Colloquium (Springfield: Charles C. Thomas, 1971). 340 pages. Associated with the Colloquium on Infantile Autism, 1968, Indiana University. [autism,proceedings] Christopher Gillberg, ed. Diagnosis and Treatment of Autism (New York: Plenum, 1989). About $90. 450 pages. From the State-of-the-Art-Conference on Autism: Diagnosis and Treatment, May 8-10, 1989, in Gotenborg, Sweden: includes thirty papers, with chapters by Eric Schopler, Lorna Wing, Christopher Gillberg, Uta Frith, Randi Hagerman, Patricia Howlin, Magda Campbell, Mary Coleman, Ivar Lovaas, Katherine Calouri, Jacqueline Jada, and others. ISBN: 0306434814 (hardcover, 1990). [autism,proceedings] S. J. Hutt & Corinne Hutt, ed. Behaviour studies in psychiatry: based on the proceedings of a symposium held at the Human Development Research Unit, Park Hospital for Children, Oxford, July 1968 (Oxford: Pergamon Press, 1970). Also New York. 223 pages. [autism,disability,proceedings] Indiana University, 1968 Colloquium on Infantile Autism. Infantile Autism: Proceedings of the Indiana University Colloquium (Springfield, Ill: C. C. Thomas, 1971). Edited by Don W. Churchill, Gerald D. Alpern, and Marian K. DeMyer. ISBN: 0398003076 (340 pages). [autism,proceedings] Peter J. Mittler, editor. Aspects of Autism: some approaches to childhood psychoses (London: British Psychological Society, 1968). 89 pages, "Proceedings of a conference on childhood psychoses ... held at the Institute for Social Work Training, London, on October 21st, 1967." [autism,proceedings] Hiroshi Naruse & Edward M. Ornitz, ed. Neurobiology of infantile autism: Proceedings of the International Symposium on Neurobiology of Infantile Autism, Tokyo, 10-11 November 1990 (Amsterdam: Excerpta Medica, 1992). Satellite meeting of the joint convention of the 5th International Child Neurology Congress and the 3rd Asian and Oceanian Congress of Child Neurology ISBN: 0444813993 (New York, 403 pages). [autism,proceedings] National Conference on Autism. National Conference on Autism, Rockville, Maryland, April 2-4, 1985 (Hot Springs, Ark.: Arkansas Research and Training Center in Vocational Rehabilitation, 1985). [autism,proceedings] Novartis Foundation. Autism: Neural Basis and Treatment Possibilities (John Wiley & Sons, 2003). Proceedings from symposium of the same name held at Novartis Foundation, London, June 18-20, 2002. ISBN: 047085099X (hardcover, 310 pages). [autism,proceedings] Edward R. Ritvo, ed. Autism: Diagnosis, current research, and management (New York: Spectrum, 1976). Part of the series Child behavior and development. 302 pages. Distributed by Halsted Press. Papers from 1975 conference held by UCLA Extension Division. [autism,proceedings] Michael Rutter, ed. Infantile autism: concepts, characteristics, and treatment (London: Churchill Livingston, 1971). 328 pages; "Study group held at the Ciba Foundation, London, 15-17 June 1970 under the auspices of the Institute for Research into Mental Retardation" [autism,proceedings] Michael Rutter & Eric Schopler, ed. Autism: A reappraisal of concepts and treatment (New York: Plenum Press, 1978). Associated with the International Symposium on Autism of 1976 in St. Gallen, Switzerland, July 12-15, 1976. ISBN: 0306310961 (hardcover, 540 pages). [autism,proceedings] Eric Schopler, ed & Gary B. Mesibov, ed. Communication Problems in Autism (New York: Plenum Press, 1985). Part of the series Current Issues in Autism. Based upon 4th TEACCH conference, 1983. ISBN: 0306418592 (paperback, 333 pages). [autism,proceedings,teacch] Eric Schopler, ed & Gary B. Mesibov, ed. The Effects of Autism on the Family (Plenum Press, 1984). Part of the series Current issues in autism. Based upon 1982 TEACCH conference. ISBN: 030641533X (hardcover, 384 pages). [autism,proceedings,teacch] Eric Schopler, ed & Gary B. Mesibov, ed. High-functioning individuals with autism (New York: Plenum Press, 1992). Part of the series Current Issues in Autism. "Based on one of the TEACCH conferences held in Chapel Hill each May"--Pref. Recommended by at least one AUTISM-list participant as a good book on Asperger Syndrome. Includes some accounts. ISBN: 0306440644 (hardcover, 306 pages). [autism,proceedings,account,teacch,aspergers]